Monthly Archives: December 2019
Interlude: New Year’s Eve
Julienne made New Year’s Eve special for me in a way it had never been before. Whether we celebrated it at a friend’s house, with her parents watching fireworks over the Inner Harbor, in Vienna at a palace ball, or in a club getting bottle service accompanied by a marching band, it was always special. Because of her. I’m posting pictures of those past celebrations on Instagram. I should be easy to find.
2019 had some of the best days of my life. It also had the very worst ones. I don’t want it to go, though, because 2019 will always be the last year that I got to kiss Julienne, to hold her hand, to smell her hair, to hold her and be held by her, to fall asleep next to her, to laugh and cry and dance and snuggle and play, together with her. 2020 will be the first year without her, when I know what I am missing. 2020 can eat a bag of dicks.
Julienne did another holiday song, of course. Play it tonight just after midnight. And, if you like, you can ring in the new year with us from 2016, when we were happy and in love and still facing the world together. I hope your new year is a happy and joyous one. Do things you never expected you’d do. Take risks, but not too many or too dangerous. Tell people you love them. Allow yourself to be loved, especially by your own self. Remember thou art mortal. Remember those you’ve loved and lost, or just lost contact with. Do not forget auld lang syne.
Interlude: Christmas
This isn’t one of the Love Song chapters. It’s taking me a bit to work myself up to the next one. Part of the reason is because of the time of year. I’ve talked about Christmas a bit before, so the season without Julienne is basically hell. But I wanted to post something, since it’s been a while. I don’t have much to say, but I wanted to share something special to me. Julienne’s Christmas songs.
These are the songs she recorded over the years for the holidays. If you like, listen to them and feel some of the joy she took in this time of year. I hope you like them.
I also hope that whatever holiday is important to you is very special and full of love and peace and joy. I love you. *finger guns*
Der Tag
This is Chapter 17 of Love Song by Julienne (ft Cancer). You can click here and scroll down for the older ones.
What I am going to try to write today is the story of, up to that time and for years afterward, the very worst day in the life of Julienne and myself. It’s the day I don’t talk or think very much about. That day is why I was so reluctant for so long to write any of the Cancer Caregiver Feelings posts. Julienne and I would sometimes talk about small, snapshot portions of that day – tiny moments in the storm – but I have never really talked about it to anyone. I spent years avoiding even the thought of that day, and I am very good at avoiding thoughts. I have no idea how this will go.
In my mind, I think of that 24 hour period, from noon on Thursday the 24th to noon of Friday the 25th, as Der Tag. It is German for, simply, The Day. I think of it because I am a fan of history, as the saying goes, and Der Tag was the term used in pre-Great War Germany for the inevitable (to their minds) day to come, when they would mobilize for war against France and Russia. On Der Tag the levers would be thrown, the machinery would turn, and destruction on a level unimaginable even to the people planning it would be unleashed. For me, Der Tag is an abscess in my soul, the source of an unthinkable well of pain and sorrow that is scabbed over lightly, a never-healed scar that is avoided at all costs lest the bleeding start.
That is the scar I will try to open today. That is the well I’ve referred to a few times while I write these stories. I expect a lot of otter, or Lewis or Jules or puppies or something-else-cute, breaks as I go along. When I break emotionally, I just type [break] in the document and walk away, for hours or days or however long it takes me to come back, and when I post these stories I replace the [break] with a picture of something adorable I found during the break to lessen the blow for myself and for anyone who might need it.
I guess I could skip it, or at least portions of it, give a brief sketch like Julienne and I would both offer when telling her story. I don’t want to do that. I feel like it’s important for me to put myself back there, the center of the storm of fear and helplessness and grief. A lot died that day. Julienne and I had to mourn those deaths while contemplating a wholly uncertain future in a hospital room in the wee hours of the morning. The people that Julienne and I were before that day died. But the people we became were born that day, stronger, kinder, and better than we were. Our relationship was broken down and reassembled into a new pattern, our identities forged together into a single whole, an unbreakable alloy both flexible and strong. We needed that to weather what was to come, and the person I am now is defined by and for Julienne because of it. Without her, I’m broken, but I’m still stronger than I was before. I’ve come this far. I can go a little further.
OK. This is it. Der Tag. The Day.

Xmas otter break.
***
Walking into Hopkins for the first time, it was clear that we were in for a completely different experience from Christiana. Everything about the place seemed to mark it as a state-of-the-art facility, from the design, colors, even the lighting. There weren’t rows of patients sitting on beds lining the halls. It was just a completely different atmosphere. Of course, that impression was just something going on in the back of my mind. In the front of my brain, I was just terrified for Julienne and trying to find her again as soon as possible, carrying the bags full of things she had wanted with her through this ordeal. I made my way through the hospital to the right section and finally found her as she was being settled in her room.
The Hospital, Part Three: The C Word (the Bad One)
This is the sixteenth chapter of Love Song by Julienne (ft Cancer). The other parts are listed below.
Prologue – Julienne
Chapter 1 – Meeting Julienne
Chapter 2 – Finding Julienne
Chapter 3 – A Kiss, and a Confession
Chapter 4 – Of Spaniel Day Lewis, Parents, and Dothraki Love Nests
Chapter 5 – Brioche French Toast
Chapter 6 – Halloween with Becca
Chapter 7 – A Ring, and a Conversation
Chapter 8 – Her Woods
Chapter 9 – Christmas, and a Chase
Chapter 10 – Alantimes Day
Chapter 11 – A Dress and a Concert
Chapter 12 – Graduation (or, Freeeeddddoooommmm)
Chapter 13 – The Joy Before the Storm
Chapter 14 – The Hospital, Part One
Chapter 15 – The Hospital, Part Two: Farts Save Lives
(No, I don’t know why the spacing is off above. No, I don’t know how to fix it. No, I don’t care. Much.)
Julienne and I had three long-running arguments throughout the entirety of our relationship from which neither one of us was willing to back down. They were, in ascending order of importance, which one of us was the luckier one to have the other, which of us was the greatest, and, the big one, which one of us loved the other more. We had the arguments through text and in person, by ourselves and in company, for as short as one or two back-and-forths to a hotly contested battle that would last an hour. We each felt very strongly that we ourselves were luckier to have found someone so incredible and who loved them so much. We each knew, beyond a shadow of a question of a doubt, that the other was the greatest person of all time. And we especially each knew that it was impossible for anyone to love anyone else more than the love we felt for the other. It was a fun game for us, trying to come up with ever-more clever (and not-so-clever) arguments (see, if you love me more, then you truly are the greatest person ever, and therefore I am the luckiest).
It was sweet of her to try, but everyone knows that a) I was the luckiest and b) she was the greatest and c) I think we loved each other as much as is possible for one person to love their partner, so that one was a tie.
The Hospital, Part Two: Farts Save Lives
This is the fifteenth chapter of Love Song by Julienne (ft Cancer). The other parts are listed below.
Prologue – Julienne
Chapter 1 – Meeting Julienne
Chapter 2 – Finding Julienne
Chapter 3 – A Kiss, and a Confession
Chapter 4 – Of Spaniel Day Lewis, Parents, and Dothraki Love Nests
Chapter 5 – Brioche French Toast
Chapter 6 – Halloween with Becca
Chapter 7 – A Ring, and a Conversation
Chapter 8 – Her Woods
Chapter 9 – Christmas, and a Chase
Chapter 10 – Alantimes Day
Chapter 11 – A Dress and a Concert
Chapter 12 – Graduation (or, Freeeeddddoooommmm)
Chapter 13 – The Joy Before the Storm
Chapter 14 – The Hospital, Part One
The first time I went back to our house after Julienne left us, I was still in a sort of Zen-like state. I’d been in that oddly calm and peaceful place since about an hour after her death and all the way through her funeral, for the most part. When I wept, it was gentle and quiet, the tears just running down my face in streams as I looked at her face, so beautiful in repose. I missed her strongly, and with everything I had, but right up until the funeral I could still hold her hand and touch her hair and kiss her cheek. I give her credit for my calm state, because it allowed me to give comfort to others in the way I know she would have done if she could. That state lasted until I walked in the front door of our home.